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Large Patient Group Organizations
  • CORD (Canadian Organization of Rare Disorders)
    CORD is Canada's national network for organizations representing all those with rare disorders. CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders.
  • EURORDIS
    EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of 779 rare disease patient organisations from 69 countries that work together to improve the lives of the 30 million people living with a rare disease in Europe.
  • Global Genes
    Global Genes® is one of the leading rare disease patient advocacy organizations in the world. The non-profit organization promotes the needs of the rare disease community.
  • NORD [National Organization of Rare Disorders (U.S.)]
    NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.
  • Rare Disease Foundation
    The Rare Disease Foundation is focused on linking basic science and clinical practice to increase the efficiency of rare disease research.

Recent Posts

  • Health Canada Approves Nintedanib to Treat Rare Lung Disease
    Health Canada Approves Nintedanib to Treat Rare Lung Disease
    Nov 28, 2019 | News, Stories
  • Wounded Warriors Bike Ride 2020
    Wounded Warriors Bike Ride 2020
    Nov 10, 2019 | Stories
  • Red Dress Gala 2019
    Red Dress Gala 2019
    Oct 29, 2019 | Stories
  • Rare Diseases and the Canadian Election
    Rare Diseases and the Canadian Election
    Oct 17, 2019 | Stories
  • 88% of Canadians Would Support Pharmacare
    88% of Canadians Would Support Pharmacare
    Sep 25, 2019 | Stories

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