Testing Negative for Huntington Disease
Recently, we talked with Jaclyn Skinner, past president of the Youth Program for the Huntington...
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Category: Stories
Stories
Is Best Medicine Coalition Right for Your Advocacy Group?
Recently, I talked to the Board of Directors Chair, John Adams about the BMC and some of its efforts to help advocacy leaders.
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Health Partners Has Raised over $160 Million
Health Partners has raised over $160 million for their 16 patient advocacy group members. The 16...
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Origins of the Huntington Society of Canada
At the recent Huntington Society of Canada’s Annual Meeting, we talked with one of the...
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The Family Secret – Huntington Disease
Jody Mitchell is the daughter and granddaughter of persons with Huntington disease. For most of...
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Talk About Grief (Before it Arrives)
Yvonne Heath speaks about the grieving process, and that one of the best things you can do to combat grief is to talk about grief before it happens.
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Teaching Researchers to be Clinically Relevant
BioCanRX provides research assistants, postdocs, graduate students, and technicians with the tools needed to make their science more clinically relevant.
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How to Help Patients to Contact Their Health Minister: A Case Study with PHA Canada
Pulmonary Hypertension Association of Canada (PHA Canada) and Scleroderma Canada’s camapign to empower patients to advocate themselves.
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