Zeal Access is working hard to keep our audience up to date on the latest developments as it relates to managing rare disease patients during the current Covie-19 pandemic. Below are some of the webinars we found that may be useful. If you know if any articles or webinars that would be of interest to our audience, please forward to firstname.lastname@example.org
Caregiving/Rehabilitation during Covid-19
The Canadian Physiotherapy Association has developed numerous webinars focused on Covid-19, including finding methods to conduct physiotherapy remotely. To view their most recent webinar, click here.
The Everylife Foundation (USA) provides patients and patient groups with updates about Covid-19, including tips for sending letters to your representatives to ensure those with chronic conditions can still receive the care they need during this pandemic. To view the webinar, click here.
The National Health Council (USA) provides patients and patient groups with information chronic condition and about Covid-19. Their most recent webinar provides helpful tips for how caregivers of people with chronic conditions can be prepared for the coronavirus pandemic. To view the webinar, click here.
Immunocompromised patients and Covid-19
Cystic Fibrosis Canada hosted a webinar focused on how to manage patients with cystic fibrosis. The webinar included a Q & A with Drs Valerie Waters and Anne Stephenson. To view the webinar, click here
The American Autoimmune Related Diseases Association (USA) hosted a webinar focused on COVID-19 and Autoimmune Disease. To view the webinar, click here.
Neuromuscular conditions and Covid-19
Jesse’s Journey focuses on Duchenne muscular dystrophy and has a webinar with Drs. Craig Campbell, Jean Mah, and Jordon Sheriko to help the Duchenne community care for their Duchenne patient during this pandemic. To view the webinar, click here.
CureSMA Canada focuses on spinal muscular dystrophy and they hosted a webinar explaining how SMA families can cope with managing a person with SMA. The webinar included input from Drs. Hugh McMillan and Sherri Katz. To view the webinar, click here.
MitoCanada focuses on mitochondrial diseases and their most recent Ask the Mito Doc webcasts are about the coronavirus pandemic. To view the webinars, click here.