At the recent Huntington Society of Canada’s Annual Meeting, we talked with one of the organizations co-founders, Ariel Walker, about the origins of this large and influential patient group. As Walker notes in this video, its origins were quite modest – just 2 people sitting around a kitchen table.

Today, the society has 20 local chapters throughout Canada and raises millions to support families as well as researchers trying to find better treatments for this poorly managed condition.

Huntington disease is a hereditary, neurodegenerative disorder with physical (weight loss, involuntary chorea movements, poor coordination, and difficulty walking, talking and swallowing), cognitive (difficulty focusing, planning, remembering, decisions making; impaired insight) and emotional (depression, apathy, irritability, anxiety, obsessive behaviour) symptoms.

Symptoms usually appear in the 3rd or 4th decade of life and can dramatically impact the patient and their family.

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