Huntington disease is a hereditary neurodegenerative disease. Symptoms usually start to appear when a person is in their thirties or forties. If a person has a parent with Huntington disease, there is a 50% chance they will develop the condition.

Young people in families with Huntington disease have many psychological issues that they have to deal with and very few people they can talk to about this rare disease. That is why organizations likeHuntington’s Disease Youth Organization (HDYO) are so important.

During the Huntington Disease National Conference held in Kelowna, BC, we talked with Chandler Swope of the HDYO about their organization.

For more information, visit hdyo.org

For more advocacy stories, visit zealaccess.ca/stories