At the Huntington Society of Canada’s National Conference in Kelowna, we talked with Brett Mitchell about the numerous Guinness World Records he has won involving snowmobiling. Those fundraising record attempts have raised over $200,000 for the Huntington Disease Society of Canada.

Huntington disease is a hereditary, neurodegenerative condition in which symptoms usually appear suddenly when a person is about 40 years of age. The genetic mutation responsible for the condition leads to cells in certain brain regions to die. As those neurons die, the physical, cognitive and emotional symptoms associated with the disease can devastate the person and their family.

Currently, there are no treatments to slow the progression of this rare disease. However, medications are available to reduce symptom severity.

Huntington disease follows a dominant inheritance pattern. That means each child of a Huntington disease parent will have a 50% chance of inheriting the disease.

Brett was fortunate to test negative for the disease but like many children of Huntington disease parents. He continues to organize fundraising events to raise funds and awareness for Huntington disease.

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